On the 24th July 2018, a lady from Plymouth decided that she wanted to create a space where MS sufferers could be supported through their MS journeys.
Amelia Ayres was diagnosed with Relapsing Multiple Sclerosis in 2014, when she was just 19 years of age.
She decided that she wanted to access social media to meet fellow people with MS, to discuss different things. However, found that many other support groups on Facebook were not specific to the UK, which often made it difficult explaining certain things such as disability schemes or treatments to members who were not from the UK. So in July 2018, she decided to set up her own online support group for the condition. Which has turned into a real lifeline for so many people.
"It's a group to support one another through our MS journeys, if anybody has any questions regarding symptoms or treatments for MS, or even to have support and someone to talk to in general, if someone is having a bad day.”
She says "The MS Group is so important, as many people with MS can feel lonely and isolated.
"Members of The MS UK Facebook Support Group have found it really helpful that everyone in the group are based in the UK or Ireland and they have other people to talk to that ‘get it’, at any time of day.”
To ‘celebrate’ the MS UK Facebook Support Groups 1 year anniversary, Amelia asked the group members to take a ‘selfie’ wearing something orange or even holding an orange item. She then went on to create the ‘Faces of the MS UK Support Group’ collage. More members than Amelia anticipated took part and the collage will also be shared on many social media platforms.
The group is constantly growing and has nearly 5000 members. More people request to join the closed support group every day. It welcomes people living with Multiple Sclerosis, caring for someone with MS, awaiting for a diagnosis or have family members or friends with the condition, in the UK & Ireland.
To join the MS UK Facebook Support Group, click the link below – www.facebook.com/groups/MSUK1
Also find us on social media –
Facebook Page: www.facebook.com/MSUKIreland/
What is MS? Multiple sclerosis (MS) is a condition which can affect the brain and/or spinal cord, causing a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance.
It's a lifelong condition that can sometimes cause serious disability, although it can occasionally be mild. In many cases, it’s possible to treat symptoms. Average life expectancy is slightly reduced for people with MS.
It's estimated that there are more than 100,000 people diagnosed with MS in the UK.
It's most commonly diagnosed in people in their 20s and 30s, although it can develop at any age. It's about two to three times more common in women than men.